Important: Action Needed

While the "Legislation Medication" article below largely addresses the problem of invisible committees (or individuals) proposing legislation, it is critical for advocates who want to preserve physician and consumer choice to take action. Since the provision in question has passed the Senate, if it makes it out of the House Health Appropriations Committee and is subsequently approved by the entire House, it is not subject to a conference committee. It's important that the Appropriations Committee reinstate the original language so that it will be subject to reconcilliation with the Senate.

Read what the American Psychiatric Association has to say about such state Medicaid prescription drug practices here. Then click on the NAMI Wake link below for needed advocacy action.
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The Governor
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By the time you read this, the House Mental Health Reform Committee may have already given its blessing to HB 1188, which authorizes the governor to appoint one-third of the membership of Local Management Entities' governing boards.

Membership of many of these boards (if not most or all) already have a majority of members who come from county government. And perhaps the idea behind giving the governor this authority is to level the playing field with consumers and/or family members.

Even were that the case, what about the intentions of the next governor and the next. And what does having one-third of LME board members appointed from Raleigh say about local control?

If anyone has any thoughts on the "why" of this bill, please pass them on to david@ncmentalhope.org.
Better Late?

Hopefully, better late than never, but click here for Perdue's budget recommentations affecting mental health, the Senate response to those recommendations and mental health legislation introduced in both chambers.

Individual bills and their progress can be looked up on the Assembly website: ncleg.net.
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Legislating Medication

Sometimes it just makes your head hurt.

It's certainly made my head hurt this past week, searching for the MH/DD/SAS  "Antipsychotic Workgroup," Googling the Net and searching my fingers to the nub on the Health and Human Services and the Division websites. Then I was told the group's proper name was the "Atypical Antipsychotic Committee." "Ah, I thought," and Googled and searched on. Still nothing.

And yet this is the committee I understood to have proposed a special budget provision to limit medications to individuals on Medicaid. Since some studies have shown that first generation drugs (generic and cheaper) are as effective as second-generation medications (branded and more expensive), a hop, skip and grand leap in logic later, someone arrived at the conclusion that psychiatrists should in most cases be required to first try a couple of first-generation generics with patients. In theory, that would save the state a gob of money that could be used for other mental health needs (or it could also simply disappear). There are "flaws in in the ointment" with the studies and logic, however, as you'll read.

I would give you the exact language of the provision, but searched and searched ... well, you know the rest.

Then I heard this provision wasn't even the committee's suggestion, but a provision in Perdue's original budget. Certainly Gov. Perdue is intelligent, but I dare say her pharmacalogical skills might be a bit rusty.

So where did the idea come from? Thin air must indeed be good for something, or nothing, depending on your feelings toward the provision. And why the need for a committee? Surely not to legitimize a decision already made (although, according to its mission statement a few paragraphs down, the committee can turn their attention to other matters as well).

At an advisory committee last week, I certainly felt like I was getting a sales pitch in favor of the provision from Dr. Louis Stein, Western Highland Network LME's medical director. As a member of the Atypical Antipsychotic Committee appointed by MH/DD/SAS Chief of Clinical Policy Michael Lancaster, Stein said he was there to inform advocates so they could make a considered decision. Stein touted the studies, touted the savings, and said today's psychiatrists had little experience with older medications and would benefit from educational efforts. But, unfortunately, he said he didn't really know how the committee evolved and whether there were any individuals with a mental health diagnosis on it or their family members.

Anyway, what would folks taking medication know about taking medication? (My satire, not Stein's)

About the only thing I do know, because it's printed on an agenda (which must make it official) is the committee's mission statement: "The antipsychotic workgroup's mission is to promote  an evidence based approach to pharmaceutical management of mental illness in an effort to improve quality of care and cost-effecitvve treatments to the citizens of North Carolina."

Sounds good, doesn't it?  And you would think that creating an "evidence based approach to pharmaceutical management" would benefit from the knowledge of those who daily live in that spot where the proverbial rubber meets the proverbial road. But perhaps Dr. Lancaster thinks the committee will be more effective without a lot of people looking on and everybody having a say.

Oh, yes, less I forget the "flaws in the ointment." The most recent study on old vs. new, which garnered a fair amount of press, was actually a study of studies and certainly wasn't a blanket endorsement for first generation antipsychotics. In fact, even though older psychotics were in general as (but not more) effective as second-generation medications, they induce more side effects, and if read objectively, news reports on the study actually make it sound as if it leans toward the second generation drugs, except for cost that is. (One such report can be found here.)

As those who live on that spot where rubber meets road know all too well, the right medications, the right mix, the right dosage, can be one of the trickiest aspects in treating mental illness. A smidgen more of this, less of that and you or a loved one can be quickly sliding toward the edge. To take away a psychiatrist's choice (especilly as far and few between as psychiatrists accepting Medicaid are) in using all available tools to help someone seems ridiculous, especially when the initiative to do so seems to have been plucked from thin air.

And then there's this whole pesky matter of exclusion. The NAMI "Grading the States" report from a couple of months back is the "need to create a culture of respect for consumer" and "that systems need to be consumer-centered and consumer and family driven." Apparently Dr. Lancaster must have skipped that part.

David Cornwell
Executive Director
North Carolina Mental Hope